about me

I am a dedicated mother of a severely food allergic child. Every moment of every day is spent keeping him safe and preventing anaphylaxis. Follow me as I go through the ups and downs of this anaphylactic life. Please click "our story" below to read the beginning of this journey.

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Friday, June 17, 2011

Please vote!

Please ask your friends and family to vote in honor of children with food allergies! Your votes are needed to win a grant to educate families and offering family support - important pieces to keep children with food allergies safe and healthy. We can't do it without YOUR help in spreading the word! You can vote once a day every day through August 27th. Thanks! Click on the link below. Asher greatly appreciates it!!!  :)


 http://www.vivint.com/givesbackproject/charity/1548

Grocery Cart Reaction :(

Took Ash to Hyvee today to get some of his things from the healthmart. I was so excited because I had coupons for some stuff and any little bit helps as his foods are so expensive.  Also, Asher loves going to the store. He is so friendly :)  I take antibacterial wipes to clean the cart off and I cleaned it good like I always do.  This will be his third grocery cart reaction. It hasn't happened for a while.  We made it through the second isle of the healthmart and he says "itchy mama" :( His little hands were bright red and bumpy and he was rubbing his eyes SO hard.  I looked for hives and didn't see any. But how itchy he was alarmed me enough. I gave him benadryl.  Thank god we didn't need EPI.  He is napping now and I am checking on him every 5 minutes.  Just a reminder that NOWHERE can be assumed safe and residue is everywhere. 

On a happy note, Ash pointed out the eggs from a distance and said "ACKY Mama!"  I said "Very good baby, we don't like eggs"  :)  He is learning!

Wednesday, June 15, 2011

Tofu pumpkin cake

Don't let the tofu scare ya! This cake is the bomb! I love pumpkin flavored treats this one I can make with dairy free cream cheese frosting. YUM!  Now, if you aren't avoiding dairy and want to use regular cream cheese you can. It's fun feeding this to people and when they are done telling them it's made with tofu ;)
What you will need:

1/2 cup dairy free shortening ( I use good ol' crisco)
1 cup granulated sugar
1 cup light brown sugar
1/2 cup SILKEN tofu
1 (15 ounce) can of pumpkin puree (not pumpkin pie filling)
2 teaspoons vanilla extract (I like to use the good stuff)
3 cups cake flour
4 teaspoons baking powder
1/2 teaspoon baking soda
1/2 teaspoon salt
1/2 cup soy or rice milk

In a a bowl combine the shortening, sugars, tofu, pumpkin and vanilla on low until creamy.  In a separate bowl, combine the flour, baking powder, baking soda and salt with a whisk. Preheat oven to 350 and spray your pan (s) with dairy free baking spray. You can use 2- 9 inch rounds or I have used a large rectangle pan.  Add the flour mixture to the shortening mixture, alternating with the milk and beat well.  Pour into prepared pans and bake for 25-35 minutes. Cool completely and frost with dairy free cream cheese frosting.

Dairy free cream cheese frosting

1/2 cup dairy free margarine ( I use blue bonet light, fleishmans unsalted or earth balance buttery sticks)
3/4 cup dairy free cream cheese
1/8 teaspoon salt
1 teaspoon vanilla extract
2 1/2 cups confectioners sugar

Cream together the margarine, cream cheese, salt and vanilla until combined well.  Slowly add the sugar and mix on low for one minute, increase the speed to medium and beat 4-6 minutes until light and fluffy. Chill for about 30 minutes before using.   YUMMY!!! :)

Isolation

Yesterday was not a good day.  I woke feeling very isolated. All alone. Angry. Shut in and anxious. It is so hard not being able to go do things like everyone else. Its hard not being jealous or envying people that have the luxury to go wherever they want without the constant worry and preparation.  It is so hard not being able to go to anyone's house and just hang out.  Sometimes I feel like we are outcasts and I never want my son to feel that way when he is older. It is not a good feeling. We have tried to have "safe" play dates and they have ended in hives and very upset friends.  For a moment, try and imagine not being able to take  your child anywhere that dairy, nuts, peanut butter or eggs or foods made with them have been. This is friends houses, families houses, parks, restaurants, birthday parties, weddings, funeral luncheons (he had a reaction at one), play centers, the childrens museum, any public place really.  Ash begs to go byebye every morning but I simply don't have that many places to take him. I was taking him to the library but they have a vending machine and the last time we went there were 2 kids eating SNICKERS bars in the kid area. It's like really? Do you have to???  SO yesterday we went to my friends house to play in her yard. We don't go in her house at all because there is peanut residue from her father in law who eats peanuts even though she asked him not to.  grrrr.  We are playing and Ash is having a great time. My peanut and tree nut radar must have been on high.  There was a Walnut and Peanut shell in her  yard! Ash didn't touch them but instinctively reached down and picked it up. Then I almost panicked, thinking I am touching something that could kill my baby! ahhhh!  I handed it to my friend and she said she didn't want to touch it :)  We got rid of them and washed our hands.  Now, I know that these were in her yard from squirrels and it wasn't her fault at all, it just really bummed me out.  I was already feeling down. I am just thankful he did not have a reaction and he got to run and play and be a little boy :)   Some days are really bad, and I ask "what kind of a life is this" then other days aren't so bad and I am thankful Ash is healthy otherwise.  As Ash gets older, I hope that I can help him to understand this and that his contact allergies go down. 

Monday, June 13, 2011

Soy trial failed

So we decided to try soymilk to get Ash some more protein.  Rice milk has hardly any protien and he has been tolerating small amounts of foods with soy. Trial FAILED!!!!!  He is still covered in bumps (since yesterday) and saying "itchy mama"  :(  I had high hopes but at least I know now. I might try to pick up some of this rice protein powder at Open Harvest to add to stuff. I hope it is not contaminated with anything. This boy needs more protein. He does not eat meat and can't have nuts or beans.... wish us luck!

On another note, it's funny how "routine" reading labels has become..I find myself reading other peoples food labels at work and they look at me like I am crazy.  Next time you buy groceries, take note of the allergens...most foods are made in the same facility as dairy, eggs and nuts!  

Sunday, June 12, 2011

I took a Speech class last quarter.  My final presentation was to be  a "problem-solution" speech.  I chose a topic that I am compassionate about. I also had great visual aids. At the end of my Speech I felt like I did my job as Asher's mama. People asked a lot of questions and I heard "I had no idea.....etc"  a lot.  I would like to share it with you. It has some alarming facts. 


Shannon Mueller
Public Speaking
June 8th, 2011

Introduction

Hook:  More than 12 million Americans have food allergies.  Three million of those are
children.  According to CDC.gov, food allergies lead to 300,000 ER visits, 2,000
hospitalizations, and 150 deaths per year.   There is no cure for food allergies.  Strict avoidance
of food allergens and early recognition and management of allergic reactions to foods are
important measures to prevent serious health consequences. Even trace amounts of a food
allergen can cause a reaction.  Most people who’ve had an allergic reaction to something they ate
thought that it was safe.  Food allergies are life-altering for everyone involved and require
constant vigilance. Some people react to foods by simply touching them.  Food allergies can
cause a life-threatening reaction called anaphylaxis.* This causes, hives, a severe drop in blood
pressure, and suffocation by  swelling of the throat.  * Early administration of epinephrine
(adrenaline) is crucial to successfully treating anaphylactic reactions.

Need:  People with food allergies, like my son, need all the help they can get when it comes
to staying safe and free from anaphylactic reactions.  Food is everywhere.  Rarely is a place
considered safe.  Food allergy sufferers rely on food manufacturers to list the top eight allergens
in their packaged foods.  The top eight allergens are dairy, eggs, peanuts, tree-nuts, wheat, soy,
fish and shellfish.  My son is allergic to all of these except fish.  As you can imagine,
feeding him can be very nerve-racking. He is so allergic that we can’t even have his allergens in
our home.  I rely on in-depth label reading when I buy foods for our family. According to
FDA.gov, the “Food Allergen Labeling and Consumer Protection Act” was passed in 2004.
This requires that labels must clearly identify to top 8 food allergens in foods. This does NOT
however require manufacturers to list if a food MAY have come into contact with allergens.
This is called cross contamination.  Often times different foods are made in the same facility
as major food allergens and cross contamination is VERY likely. * To those with severe food
allergies, this is a BIG deal.  It only takes a trace amount of an allergen to trigger a reaction in
my son and so many others.  In a review of foods of randomly selected manufacturers, the FDA
found that 25 percent of sampled foods failed to list eggs or nuts as a potential allergens.  These
trace amounts of eggs and nuts can KILL someone with a severe allergy to them.  

Satisfaction:  There is a solution to this problem. The FDA needs to be convinced that this
is a need.  The FDA needs to pass this law that requires food manufacturers to list ALL potential
food allergens in foods, whether a part of the ingredients or inadvertently introduced to the food.

Visualization:  Imagine you have severe food allergies.  Imagine you’re trying a new cracker               
that should be safe, when suddenly you break out into hives and your throat closes up. Imagine
being the mother of a young child and being terrified to ever feed your child unless you
made it in your own kitchen.  Imagine rushing a loved one to the ER to save their life from
eating an undisclosed allergen that could easily be listed with a little additional ink. 

Conclusion:  Therefore we have seen that there is a need for a law to be passed to require that
all allergens are disclosed on foods.

In summary, I would like to remind you that a person doesn’t have to eat a whole peanut or drink
a whole glass of milk to suffer from a severe reaction. It only takes a speck.  People with food
allergies have the right to know if foods are made in the same facility as the top 8 allergens.

Action:  I would urge you to sign the petition at the back of the room. Getting this law passed
can and will save many lives.  




















I wanted Ash to experience a doughnut so I attempted these dairy, egg and nut free beauties.  Never in a million years would I have ever guessed that I would make doughnuts from scratch! After all, I am the girl who used to live off of ramen noodles, fried egg sandwiches (ironically enough) and cereal.  These donuts turned out great and you would never guess they were allergen friendly. 
What you will need:

vegetable oil for frying
3/4 cup unsweetened applesauce
2 teaspoons vanilla
3/4 cup granulated sugar
3 tablespoons dairy free margarine (melted)
4 1/2-4 3/4 cups unbleached all purpose flour
3 1/2 teaspoons baking powder
1 teaspoon ground cinnamon
1/2 teaspoon ground nutmeg
1/2 teaspoon salt ( I use Kosher)
1 cup soy or rice milk
Heat oil in a large pot.  While the oil is heating, combine the applesauce, vanilla and 3/4 cup sugar. Add the margarine and mix well.  In a separate bowl, combine 4 1/2 c flour, baking powder, 1 tsp cinnamon, nutmeg and salt with a whisk. Add the flour mixture and the rice milk alternately to the applesauce-margarine mixture.  Add more flour if needed to make a smooth and not too sticky dough.  Transfer the dough onto a lightly floured board (or counter) and knead for about 1 minute.  Roll it out into a 1/2 inch thick circle.  Dip a doughnut cutter (I used a drinking glass) into the flour and cut into the dough.  Remove trimmings and re-roll. Repeat the process.  Put a few doughnuts into the hot oil. Avoid over crowding.  Fry until they rise to the surface and turn them over.  They will be golden brown on both sides.  Lift them out with tongs and place them on paper towels.  Mix together 1/2 cup sugar and 2 teaspoons of cinnamon. Roll your doughnuts in the mixture. Shake off excess and enjoy!  (To make my doughnut holes I used a pill bottle)

With conviction

Well, I finally did it. Made time to start his blog. I need an outlet. I want to educate.  I want to share recipes. I want to comfort other Mom's going through this.  I want this to be real for people.  I want people to know that food allergies are serious.  I want people to know that if Asher eats an allergen he won't get a "tummy ache".  I need this.  So here it is! Oh, and I promise to include positive posts.  I will have my days where I want to rant...but we have good days too!  I am anxious to get this going. Follow me!  Thanks for reading.